Good days

Yesterday was a busy doctor day. Lochlan's appointment with his GI doctor was very productive. I feel like we communicated well and agreed on a plan. We have been given the OK to stop the Prilosec to see what happens. Initially, I'm sure that there will be a rebound effect, and the vomiting will increase for a bit, but hopefully after that, he won't need it anymore. We agreed to have an early intervention speech pathologist meet with us to help us get Lochlan to start eating solids. The video X-ray that looks at swallowing will be put on hold for the time being, but the X-ray of his stomach and small intestines is imperative. It is actually something that should have been done before the feeding tube was placed. Unfortunately we will need to wait a few weeks for that.

We also saw his pediatrician. Lochlan had a 6-month check up, but because he was so ill, we waiting to get his immunizations. He did really well with the shots yesterday, but today he was a little cranky and vomited more than usual. At his appointment he weighed 15lbs and measured 26.5in. Yes, he is still tiny, but we are just happy to be on the chart again. We also received some lab work from his nephrologist. Not much good news there, but nothing terrible. He continues to be anemic, his white blood cell count has been chronically elevated without a know cause, and his kidney function is slightly worse than last time.

Aside from the medical aspect, Lochlan has been doing well. He has been smiling a lot, interacting more, and sleeping decently. I would say that developmentally he is little behind, but not much. This week he has started making more and more sounds. The most discerning sound is the k sound when he sees the cat. I thought that maybe he would say Mama or Dada, but kitty cat may be his first word.

We have started having more good days than bad days around here. It's always a good day when we are all home together. Adam likes to say that we are a seal team and I agree. No matter the predicament, Adam and I seem to get through any together. However, when we are on solo missions, or home without one another, the little ones outnumber us and things get hairy. Lately, the days have been smooth. I guess I have just adapted to the continuous feeds and the vomiting. Also, Lochlan has been playing independently, so pumping has gotten easier. Since we are not sure if the peace will last, we decided that it would be a good time to toilet train Declan. I am so happy to finally have the time to do this with Declan, but it makes me sad. Lochlan will most likely not be able to ever be traditionally toilet trained. Sometimes it can be overwhelmingly challenging to not focus on all of the things that Lochlan will miss out on.